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FCRP Policy Statement


August 1997- Volume-7- Edition-5

Working Caregivers for Cancer Patients: Sacrifices in work and personal lives


Nearly 7 million Americans provide care or manage care for a relative or friend aged 55 or older who lives at least one hour away. In a recent survey that focused exclusively on long-distance caregiving it was found that the primary caregivers spent an average of 35 hours per month giving care -- roughly the equivalent of one week of work each month. One-quarter of all the respondents spent more than 41 hours per month providing care.

Long-distance caregiving is a large and growing concern to baby boomers. The average age of the caregivers interviewed was 46. The survey indicates that approximately 3.3 million boomers are providing long-distance care. To deal with this growing phenomenon, employers, consumers and government will need to foster better ways of helping the caregiver and receiver.

Impact on Workplace: Productivity Losses

As long-distance caregiving grows along with the aging of boomers and their parents, employers in the U.S. may face serious employee leave and productivity issues. More than half of all the respondents said their responsibilities interfere with their professional, social, or family needs. Among the employed respondents, 25 percent said they miss at least one day of work in a typical month because of their caregiving, and 15 percent said they had taken unpaid leave during the past year. It is estimated that at least 15 million days of work are missed each year because of long-distance caregiving.

Opportunities for Private Businesses and Voluntary Sector

Given their burdens, long-distance caregivers could benefit from assistance. Caregivers report that the greatest unmet needs of the care recipients are for personal care and assistance, companionship, help in coping with an illness, and more family contact. More than 70 percent of the caregivers reported that they would benefit from educational materials about community and health services.

How is the Workforce Affected by Caregiving?

Time lost from work unscheduled leaves, late arrivals, missed work days, excessive personal phone calls
Decreased productivity 27% work less effectively because of worries about the care recipient. 58% work more slowly because of being worried or upset.
Lost opportunities About 1 in 7 caregivers has to quit work to become a full-time caregiver. Some workers take unpaid time off to cope, some turn down career opportunities. Others continue to work to be able to afford the care provided by others for their loved ones.

Policy Implications

  • Tax incentives for businesses which provide on-site adult day care services and computer technology to support alternative work schedules.
  • Support businesses which provide pre-tax dollar accounts for elder care and medical care benefits for employees' elderly dependents.
  • Funding for agencies which provide meals, chore and housekeeping services.
  • Develop educational materials about community and health services.

More than $13,000 per year is lost on each employee who has caregiving responsibilities. Programs developed to address the issues related to caregiving must provide assistance which will benefit both employees and employers.

Taken from: Reinemer, Mike. (1997, May). The National Council On the Aging: Seven Million Provide Long-Distance Caregiving to Elderly [12paragraphs]. Available: http://www.ncoa.org/content.cfm?sectionID=105&detail=49


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Last modified on 01/28/2004